Home At Last!

Home again, home again, jiggity jig!  Oh, what a happy day it was when the docs told us we can go home for a while.  It was initially discussed that we would be moving to the Palo Alto Ronald McDonald House which was "okay", but Emilie's doctors thought she was doing well enough to go all the way home.  Emilie has been home for 12 days now which has been wonderful.  I was a little super nervous at first and worried about everything.  Worried about fevers, worried about administering the IV antibiotic, worried that I wouldn't hear her in the night, worried that the house wasn't clean enough, worried about the boys getting too close to her...Yes, I am a little nuts!  We have made the adjustment pretty well considering Emilie is still not able to walk.  I should actually say that Emilie has made the adjustment pretty well in that she is so positive and patient.  Her upper body is getting really strong which makes our job of moving and helping her with daily tasks pretty easy.  We have stayed home with the exception of our 4 visits/week to Stanford for clinic appointments and physical therapy appointments.  Emilie's counts are still very low and we didn't want to bring her out to a crowded, germ-infested location.  She is itching to go shopping, but that will have to wait a while.  Sadly, Paul came down with a high fever on Wednesday, so we banished him and Nicolas to my mom's.  It has been hard for the whole family with the boys being gone.  They so want to hang out with Emilie and just "do life" at home rather than at the hospital. 
Emilie will have her next bone marrow aspirate and lumbar puncture on Tuesday with her next chemo starting Friday.  Please pray that her results come back negative and that her next chemo treatment goes smoothly.